Live in the now.
Plan for tomorrow.
Balancing life with Huntington’s disease (HD) and knowing its effects on you takes resilience. There is evidence that nearly 50% of people living with HD were unaware of the actual impact of the disease. Even though your life changes as HD progresses and small pieces of you float away—hope can remain. You can find resources and information here that you can use to discuss with your doctor—including information about potential clinical trials, support groups, and news about Huntington’s disease.
Balancing life with Huntington’s disease (HD) and knowing its effects on you takes resilience. There is evidence that nearly 50% of people living with HD were unaware of the actual impact of the disease. Even though your life changes as HD progresses and small pieces of you float away—hope can remain. You can find resources and information here that you can use to discuss with your doctor—including information about potential clinical trials, support groups, and news about Huntington’s disease.
HD is caused by a mutation of the Huntington gene that can be passed from generation to generation. This mutation causes brain function to slowly and steadily decline. Although there is no cure for this progressive, neurodegenerative disease, there are things you and your doctor can do right now to learn about and help manage symptoms that may impact the way you think, act, and move.
The latest HD news
Detecting and treating HD symptoms earlier
We know that small changes in your brain and how you process information can occur 20 years before movement symptoms appear.
A disease classification system used in HD research and clinical trials
See how this classification system may help patients and HCPs to track HD disease progression.*
Continued reason to keep hope alive
There is always a need for a better understanding of HD because this continued commitment may help you—and people living with HD—for generations to come.
*Please note that this classification system is being provided for information purposes only. It is used to stage people with HD for clinical trials only and is not a diagnostic classification system used in clinical practice.